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Hello my lovelies....sorry there was no blog yesterday, it was a bit of a funny day..Alex was fine, very tired...Lou and I had to fight with him to get him to lie down and close his eyes but, of course, when he did...he slept for several hours!!!! He is like Grandpa Simpson...protesting that he isn't tired and nattering away then midway through a sentence...Zzzzzzzzzzzzzzzzzzzzzz!!I was quite fed up yesterday...Sunday is a rubbish day in hospital..Not many staff...nothing happening...went to get clean sheets for beds and clean towels - cupboard was empty - the answer when I asked was...Oh Yes, it's Sunday!!!! Grrrrrrrrrr...there are LOTS of very frustrating things here...which I could rant about for YEARS....but I will refrain and save it all for my letters to David Cameron and the Chief Exec of this crappy, dirty hospital!
Anyway....frustrations aside...... Was expecting today to be tough...but....... for the minute, Alex is doing really well..he started the last bit of chemo today...the one which will get rid of all his neutrophills...he is in total isolation now...aprons on in the room and gloves for close contact, think that keeps up until a couple of weeks after transplant when they see a return of his neutrophills.
He is still full of energy ( as you can see from the blog video) I can't help but feel that it is going to crash...aaaaaaannnnnyyyyy minute now, he is getting quite teary and ranging from highs to lows in a millisecond. I have been warned that he may start to feel really unwell soon. He is already off his food massively...he has lost quite a bit of weight so they talked to him today about putting a feeding tube in for a while... he seems ok about it :)
The Nurses really like him, he has already built a reputation as being really cheerful and lovely...he takes all his meds with no complaints and always says thank you...even for nasty, cold IV pushes at 4am in the morning :)
He is very glad to have Daddy back...armed with games and more importantly...Walkie Talkies!!!!! They have had much fun tonight...Dave has had to go and walk around the hospital and test the signal...Dave, Call sign: Titan. Alex, Call sign: Armageddon. Me, Call sign: yep...you guessed it...SHE HULK!!!!...that is going to be great fun when I'm making a coffee and he calls me!! :)
Anyway...I ramble....It is now about 10.30 and he is getting hooked up to second round of Chemo at 11pm for a 3 hour session...best I go and attempt to make him lie down and try to get some sleep...wish me luck!!!! :)
Miss you all lots..lots of love....night night XXXX
Love the joke Alex- I will obviously have to try harder - I am VERY competative!!
ReplyDeleteKnock, knock! Who's there? I ate mop. I ate mop who? Gross!
Missed you guys yesterday!
I can't believe how much energy you have - I was tired just watching your video.
The walkie talkies sound fun, and Lou, " Come in She Hulk" has me in stitches - Unfortunately this name may stick!!!
Love to you all xxxx
You were born to be "She-Hulk" - much better than "old Lady".
ReplyDeleteOn a practical point, don't write direct to David Cameron - write to your MP and ask him/her to to follow up with David Cameron and SoS Health for response. If you write direct to the PM a civil servant will answer without the PM seeing it. If you write to your MP, David Cameron will see the letter and respond to your MP and they'll forward the response to you.
Dear Alex,
ReplyDeleteHope you feel better then the last few days and still drinking lots of ribena. I like the joke about crockacola from Ellie (good choice).your bed is so cool I want one!!!!!!!!!!!!!!! I hope you will be back soon. Good luck with the rest of your transplant all are school miss you.
From Sam white and Alana marris
p.s.(this is Sam’s joke) what’s the best day to eat toffee…….chewsday.
Dear Alex
ReplyDeleteWe wish you were here (right now!).We MISS YOU A LOT (RIGHT NOW). We hope everything is going to plan!!! We hope you’r enjoying your Ribena ! we hope you enjoy this joke…what do aliens do before they move house? They planet first!
Love from Ben and Josh
P.S WE HOPE YOU’ RE BACK SOON!”!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Thinking of you all - and loving the blog. Fi Gibbins x
ReplyDeleteHey Alex,
ReplyDeleteTwo fish are in a tank and one turns to the other and says "If you drive, can I man the guns?"
I think She Hulk is a great callsign but not as good as Armageddon...make sure you call your Mum every time she leaves, especially when she goes to the Cafe, the loo or the bank!
Keep smiling and keep those videos coming; they are really good!
Love
Mike
Hi Alex
ReplyDeleteWhat happened when the dog went to the flea circus ?
He stole the show !
Lots of Love
Emma xxx