Day Plus 31.. The first trip to the outside world of 2012!!

Hi All!!!!

A Very Happy New Year to you all.... as you can see from the videos.....we have started our New Year really well!!!!!! :))

As Alex's white cells and neutrophills are holding steady above 1 and he is off all IV meds...... they let us go OUTSIDE!!!!!!!!

HOORAH!!!!!!!

Luckily, as it is a bank holiday, it is really quiet around here so it is safe to venture out..... we went to Queens Square Gardens just outside the hospital.....grabbed a drink from Costa and had a great 20 minutes in the fresh air and sunshine.....and freezing cold!!!!

BRILLIANT!!!!!!

It must seem really strange to you guys that we find it so very exciting to walk outside for 20 minutes but it feels like such a massive milestone.....

Alex hasn't seen the outside world for almost 7 weeks.....it absolutely feels today like I can actually dare to really hope........... that we might just be home by the weekend..........INCREDIBLE!!! LOL

Alex is doing extremely well, no problems at all with his meds all being oral he has made the switch really well...he is fantastic.

His skin reaction doesn't appear to be GVHD but is very likely to have just been a reaction to the blood transfusion...which is great.....GVHD or a temp are the things that would keep us here.....
The Docs have said that it could still happen...they said that children have a habit of spiking a temp half an hour before discharge.....

Let's hope that we continue to be an exception to the norm!!!! :))

I know that we still have a long road ahead....the next 6 months will be crucial....holding on to the engraftment and staying well and germ free.
We need to slowly build Alex's strength and weight back up.....but it will be so much easier at home...with proper rest and food I'm sure it will take no time at all!!

It's all just a little bit exciting isn't it!!!????????? :)

It is lovely to be in a position where I am having to hold back the excitment rather than the worry and stress.....
I never dared to think this far ahead.......and now...all of a sudden...

Here we are.......on the threshold of a new life!!!   It's all very dramatic isn't it!!???? LOL

I hope that you all having a great start to the New Year and that it will continue for all of us!!

Can't wait to see you all SOOOOOOOON!!!!!!

Girls in Hill Head.....get that  Champagne on ice?????? :))

Lots and lots of love and hugs

Lou XXXXX